Team USA Visits the White House

Watch the video:

http://www.whitehouse.gov/blog/2012/09/18/behind-scenes-video-team-usa-white-house?utm_source=email182&utm_medium=graphic&utm_campaign=olympics

Ensuring Civic Access for Persons with Disabilities

September 13, 2012, U.S. Department of Justice

http://www.justice.gov/opa/pr/2012/September/12-crt-1110.html

National Forum on Disability Issues

I know, I know…I said I was quiet now, but the election season is bringing some advocacy opportunities to the fore.

Important things you can do for disability advocacy from the comfort of your own home this week, to influence the election season and advance the civic dialogue for persons with disabilities:

#1 – Contact President Barack Obama and request that he attend and participate in the Forum

Click here for links and invitation templates

#2 – Register for the live Webcast

Visit the NFDI website to Register

#3 – Spread the word!  Post links to the NFDI and invitations on candidates’ Facebook pages, blog about it, etc.  Never forget that there’s power in unified numbers.

 

California Childrens Services

from the San Francisco Chronicle, May 28, 2012

http://bit.ly/KPuz40

This article is just one expression of the terribly unjust situation we special needs families find ourselves facing in California.  The means cutoff Governor Brown is proposing for California Childrens Services medical therapies is laughable, and will leave thousands of middle and lower class children without the professional guidance and resources they need to flourish as independent members of society, and their families without alternatives for helping their children succeed.

MTV Voices Launches Silver Scorpion Superhero Web Series

from Open Hands Initiative

April 24, 2012

“The Open Hands Initiative, in partnership with Liquid Comics and MTV Voices, announced today the newest rendition of the Silver Scorpion comic book character – an animated web series featuring the world’s first disabled cross-cultural superhero.

Silver Scorpion is the brainchild of a group of American and Syrian youths with disabilities who gathered in Damascus a little more than a year ago. The hero they envisioned, an Arab teen that loses his legs in a tragic accident, has the power to not only bend metal with his mind, but—the creators hope—to transform his world… and ours.”

> Read more

> Watch Episode 1!

“U.S. Pushes Target for Hiring the Disabled”

Wall Street Journal—February 29, 2012

> Read the article

Critical Advocacy for California Childrens Services Needed NOW

ATTENTION:

• California families of children with disabilities and special health care needs
• Californians who care about a child with a disability and/or special health care need
• anyone and everyone!

California Childrens Services (CCS)—our statewide agency supporting children with special medical needs—is at great risk under Governor Brown’s proposed budget cuts.  There is no time to lose, as I understand that the legislature may consider these cuts as early as March 8th.

Us families of children with special needs are mostly exhausted and overwhelmed by the additional support we give our kids throughout the days, and the hoops we have to jump through to have them included in basic societal norms, but we must find a reserve of energy to begin advocating in an organized, rigorous fashion…or we’ll be more exhausted and overwhelmed having lost our external services and supports.

Please do two things now:

Sign the petition > http://www.thepetitionsite.com/1/SaveCCS-therapy/

Distribute a personal letter > See steps for letter-writing advocacy below:

1. Write a letter, or modify and personalize highlighted portions of attached letter by a Santa Clara parent/advocate. Explain how the budget cuts will affect you, someone you care about, societal values, etc.’
2. If relevant, include a picture of your child on or with the letter.
3. Send and/or fax the letter to:
   1. all members of the Senate Budget Subcommittee on Health and Human Services (see attached contact list of addresses and fax #s)
   2. all members of the Assembly Budget Subcommittee on Health and Human Services (see attached contact list of addresses and fax #s)
   3. your state assemblymember and state senator (to find out names and contact info, type in your zip code at votesmart.org)
4. Make a version of your letter that California friends and family can send on your family’s behalf.  (Make it easy for them by providing addressed stamped envelopes, or offering to pick-up and fax for them.)
5. If your child can write his/her own letter, and/or has a sibling who can do so, that would be very effective.

For those unfamiliar with CCS, it is a state agency that provides essential, quality therapy,  health care, medical equipment and clinical oversight to children with certain diseases, physical limitations, and chronic medical problems.

The proposed drastic budget reduction to the medical therapy program will result in cutting at least 30% of the children who receive services, based on family income, and accordingly about 50% of CCS staff.  These cuts will not result in budget savings for the state, it will just shift the burden to other underfunded state agencies and leave some children out in the cold.  Regardless of income level, CCS services are a vital piece of enabling these children to succeed, thrive and fully participate in our communities.