Advocate in DC or in your congressional district April 15-17…
2013 Disability Policy Seminar: Ready, Set, Advocate!
Filed under advocacy, civic/government, civil rights, disability awareness, IDEA, public policy
2013 Information & Resource Conference, San Francisco
Support for Families of Children with Disabilities is hosting their annual FREE conference day this Saturday, March 23rd. There’s a keynote by SFUSD administration, morning and afternoon workshops, and a resource fair of organizations and programs that offer services and support. Check it out!
> Information/To Register: http://www.supportforfamilies.org/resourcefair/index.html
Filed under advocacy, disability awareness, education, inclusion, SFUSD
How Parents Can Be Advocates for Their Children
Great general tips for parents of school-age children from the National Center for Learning Disabilities:
Filed under advocacy, education, IDEA, special education
Michael Graves, champion of accessible design, is appointed to the Architectural and Transportation Barriers Compliance Board (also known as the Access Board)
There is a video interview; start at 4:40 if you want to skip the tour of his house and hear him talk about disabilities related to architectural environments.
“I want all the things we are used to for an ambulatory society, but one that takes care of people like me with equal vigor.”
- Michael Graves
Filed under civic/government, disability awareness, inclusion, public policy
Special Needs Parent Makes Historic Auction Purchase as Investment to Secure Son’s Future Care
As I was driving this morning listening to NPR, I heard this story about a one-of-a-kind baseball card from the 1800′s that sold at auction for $92,000.
While incredulous at the price, and rapt at the history surrounding the piece, the most interesting part of the story was the reason that the buyer gave for the purchase—to ensure his special needs son’s future health care.
> Read the Portland Press article
While we all would love to have means at this level to help ensure our children’s future, we can ratchet it down to a more typical scenario and focus on his motivation, shared by all special needs families, which is that financial security, at whatever relative level, is critically important in caring for special needs children. That is, obviously, more accessible to some than others, with some parents having to make huge sacrifices to gain that security.
I guess I just appreciate the buyer’s candor about his family situation and intent for the special needs message to be integral to this news story, and hope it helps build understanding in a broader audience to fuel empathy and support.
Filed under disability awareness
RTI International awarded a five-year, $10.2 million contract with the Centers for Disease Control and Prevention to advance developmental disability research
Filed under disability awareness
Every word resonates
READ THIS.
from the Huffington Post, January 18, 2013
Gabe’s Care Map: Cristin Lind, Mom, Illustrates What It Takes To Raise One Boy With Special Needs
Gabe’s Care Map, by Cristin Lind
Filed under disability awareness
